Kreftsykepleie. Palliativ pleie. Lindrende omsorg

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Plont, M., Mejdahl, C. T., Haar, T. R., & Skovlund, P. (2023). Supporting Families with Breast Cancer: Insights from the Danish Nurse-Led Program “The Children’s Tour” for Families with Parental Cancer. Seminars in Oncology Nursing, 39(5), N.PAG. https://doi.org/10.1016/j.soncn.2023.151482

Karidar, H., Åkesson, H., & Glasdam, S. (2016). A gap between the intention of the Swedish law and interactions between nurses and children of patients in the field of palliative oncology – The perspective of nurses. European Journal of Oncology Nursing, 22, 23–29. https://doi.org/10.1016/j.ejon.2016.01.005

Arber, A., & Odelius, A. (2018). Experiences of Oncology and Palliative Care Nurses When Supporting Parents Who Have Cancer and Dependent Children. Cancer Nursing, 41(3), 248–254. https://doi.org/10.1097/NCC.0000000000000491

Tafjord, T. (2021). Managing Strong Emotions: Nurses’ Recognition and Responses to Personal Emotions When Approaching Parents With Cancer and Their Dependent Children. Qualitative Health Research, 31(5), 926–941. https://doi.org/10.1177/1049732320983788

Golsäter, M., Enskär, K., & Knutsson, S. (2019). Parents’ perceptions of how nurses care for children as relatives of an ill patient- Experiences from an oncological outpatient department. European Journal of Oncology Nursing, 39, 35–40. https://doi.org/10.1016/j.ejon.2019.01.004

Holmberg, P., Nilsson, J., Elmqvist, C., & Lindqvist, G. (2020). Nurses’ encounters with children as next of kin to parents with a cancer diagnosis on oncology wards. Nordic Journal of Nursing Research, 40(1), 33–40. https://doi.org/10.1177/2057158519868437 

Hauger, B., Wiker, M. & Hamnes, B. (2020). Sykepleiere strekker ikke til i arbeid med barn som pårørende. Nordisk sygeplejeforskning, 10(4), 266-279. https://doi.org/10.18261/issn.1892-2686-2020-04-05 Link til artikkelen på Idunn.no

Hofset Larsen, B. & Nortvedt, M. W. (2011). Barns og ungdomsinformasjonsbehov når mor eller far får kreft. Sykepleien Forskning, 6(1), 70-77. https://doi.org/10.4220/sykepleienf.2011.0068 

Semple, C. J., McCaughan, E., Smith, R., & Hanna, J. R. (2022). Parent’s with incurable cancer: “Nuts and bolts” of how professionals can support parents to communicate with their dependent children. Patient Education & Counseling, 105(3), 775–780. https://doi.org/10.1016/j.pec.2021.06.032

Hauken, M. A., & Farbrot, I. M. M. (2022). The Fuelbox “Young Next of Kin”-A Mixed-Methods Study on the Development and Piloting of a Communication Tool for Adolescents Coping With Parental Cancer or Death. Cancer Nursing, 45(2), 148–160. https://doi.org/10.1097/NCC.0000000000000960

Tafjord, T. (2021). Managing Strong Emotions: Nurses’ Recognition and Responses to Personal Emotions When Approaching Parents With Cancer and Their Dependent Children. Qualitative Health Research, 31(5), 926–941. https://doi.org/10.1177/1049732320983788

Holmberg, P., Nilsson, J., Elmqvist, C., & Lindqvist, G. (2020). Nurses’ encounters with children as next of kin to parents with a cancer diagnosis on oncology wards. Nordic Journal of Nursing Research, 40(1), 33–40. https://doi.org/10.1177/2057158519868437

Karidar, H., Åkesson, H., & Glasdam, S. (2016). A gap between the intention of the Swedish law and interactions between nurses and children of patients in the field of palliative oncology – The perspective of nurses. European Journal of Oncology Nursing, 22, 23–29. https://doi.org/10.1016/j.ejon.2016.01.005

Semple, C., McCaughan, E., & Smith, R. (2017). How education on managing parental cancer can improve family communication. Cancer Nursing Practice, 16(5), 34–40. https://doi.org/10.7748/cnp.2017.e1406 Fulltekst via ProQuest

Holmberg, P., Nilsson, J., Elmqvist, C., & Lindqvist, G. (2020). Nurses’ encounters with children as next of kin to parents with a cancer diagnosis on oncology wards. Nordic Journal of Nursing Research, 40(1), 33–40. https://doi.org/10.1177/2057158519868437

Golsäter, M., Enskär, K., & Knutsson, S. (2019). Parents’ perceptions of how nurses care for children as relatives of an ill patient- Experiences from an oncological outpatient department. European Journal of Oncology Nursing, 39, 35–40. https://doi.org/10.1016/j.ejon.2019.01.004

Tafjord, T. (2020). Recognition of Insufficient Competence—Nurses’ Experiences in Direct Involvement With Adolescent Children of Cancer Patients. Cancer Nursing, 43(1), 32–44. https://doi.org/10.1097/NCC.0000000000000646

Arber, A., & Odelius, A. (2018). Experiences of Oncology and Palliative Care Nurses When Supporting Parents Who Have Cancer and Dependent Children. Cancer Nursing, 41(3), 248–254. Fulltekst

Hauken, M. A. (2017). Alle trenger stötte når mamma eller pappa er syk. Sykepleien, 105(e-64175 ), 1-14. https://doi.org/10.4220/Sykepleiens.2017.64175

Reinertsen, K. (2012). Barn til kreftsyke vil vite mer. Sykepleien, 100(8), 66-9. http://dx.doi.org/10.4220/sykepleiens.2012.0078

Bøckmann, K., Kjellevold, A. & Sotberg, E. D. (2015). Barn og ungdom som pårørende. I K. Bøckmann, A. Kjellevold & E. D. Sotberg (Red.), Pårørende i helse- og omsorgstjenesten : en klinisk og juridisk innføring (2. utg. utg., s. 255-302). Bergen: Fagbokforlaget. Oppslag i ORIA

Hanna, J. R., McCaughan, E. & Semple, C. J. (2019). Challenges and support needs of parents and children when a parent is at end of life: A systematic review. Palliative Medicine, 33(8), 1017-1044. https://doi.org/10.1177/0269216319857622

Golsäter, M., Enskär, K. & Knutsson, S. (2019). Parents' perceptions of how nurses care for children as relatives of an ill patient- Experiences from an oncological outpatient department. European Journal of Oncology Nursing, 39, 35-40. https://doi.org/10.1016/j.ejon.2019.01.004

Golsäter, M., Henricson, M., Enskär, K. & Knutsson, S. (2016). Are children as relatives our responsibility? – How nurses perceive their role in caring for children as relatives of seriously ill patients. European Journal of Oncology Nursing, 25, 33-39. https://doi.org/10.1016/j.ejon.2016.09.005

Tafjord, T. (2020). Recognition of Insufficient Competence—Nurses' Experiences in Direct Involvement With Adolescent Children of Cancer Patients. Cancer Nursing, 43(1), 32-44. Fulltekst

Kerr, D., Milnes, S., Ammentorp, J., McKie, C., Dunning, T., Ostaszkiewicz, J., … Martin, P. (2020). Challenges for nurses when communicating with people who have life-limiting illness and their families: A focus group study. Journal of Clinical Nursing, 29(3-4), 416-428. https://doi.org/10.1111/jocn.15099

Karidar, H., Åkesson, H., & Glasdam, S. (2016). A gap between the intention of the Swedish law and interactions between nurses and children of patients in the field of palliative oncology – The perspective of nurses. European Journal of Oncology Nursing, 22, 23–29. https://doi.org/10.1016/j.ejon.2016.01.005

Golsäter, M., Enskär, K. & Knutsson, S. (2019). Parents' perceptions of how nurses care for children as relatives of an ill patient- Experiences from an oncological outpatient department. European Journal of Oncology Nursing, 39, 35-40. https://doi.org/10.1016/j.ejon.2019.01.004

Golsäter, M., Henricson, M., Enskär, K. & Knutsson, S. (2016). Are children as relatives our responsibility? – How nurses perceive their role in caring for children as relatives of seriously ill patients. European Journal of Oncology Nursing, 25, 33-39. https://doi.org/10.1016/j.ejon.2016.09.005

Elmose, B. (2011). Stöttende samtaler vigtige for familiens faelles fundament. Sygeplejersken, 111(17), 62-7. http://www.dsr.dk/Sygeplejersken/Sider/SY-2011-17-62-1-Fag.aspx

Ellis, S. J., Wakefield, C. E., Antill, G., Burns, M., & Patterson, P. (2017). Supporting children facing a parent’s cancer diagnosis: a systematic review of children’s psychosocial needs and existing interventions. European Journal of Cancer Care, 26(1),   https://doi.org/10.1111/ecc.12432

Flere aktuelle - end of life - critically ill parents

Hanna, J. R., McCaughan, E. & Semple, C. J. (2019). Challenges and support needs of parents and children when a parent is at end of life: A systematic review. Palliative Medicine, 33(8), 1017-1044. https://doi.org/10.1177/0269216319857622

  Holmberg, P., Nilsson, J., Elmqvist, C., & Lindqvist, G. (2019). Nurses’ encounters with children as next of kin to parents with a cancer diagnosis on oncology wards. Nordic Journal of Nursing Research. https://doi.org/10.1177/2057158519868437

Påørende til syke foreldre generelt

Knutsson, S., Enskär, K., Andersson-Gäre, B. & Golsäter, M. (2017). Children as relatives to a sick parent: Healthcare professionals' approaches. Nordic Journal of Nursing Research, 37(2), 61-69. https://doi.org/10.1177/2057158516662538

Skogøy, B. E., Sørgaard, K., Maybery, D., Ruud, T., Stavnes, K., Kufås, E., … Ogden, T. (2018). Hospitals implementing changes in law to protect children of ill parents: a cross-sectional study. BMC Health Services Research, 18(1), N.PAG-N.PAG. https://doi.org/10.1186/s12913-018-3393-2

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Eksempel på treff: 

Hofset Larsen, B. & Nortvedt, M. W. (2011). Barns og ungdomsinformasjonsbehov når mor eller far får kreft. Sykepleien Forskning, 6(1), 70-77. https://doi.org/10.4220/sykepleienf.2011.0068 
 

Hauger, B., Wiker, M., & Hamnes, B. (2020). Sykepleiere strekker ikke til i arbeid med barn som pårørende. Nordisk sygeplejeforskning, 10(4), 266-279. https://doi.org/10.18261/issn.1892-2686-2020-04-05     Bakgrunn: Sykepleier plikter etter Norsk lovverk å ivareta mindreårige barn som pårørende. Studier tyder på at dette arbeidet ikke er tilstrekkelig ivaretatt, og fordi barn som pårørende er et satsningsområde er det behov for mer forskning om hvordan det jobbes med barna, samt hvordan dette arbeidet virker. Hensikt: Å utforske sykepleieres opplevelser med oppfølging av barn som pårørende av kreftpasienter i palliativ fase i sykehjem. Metode: Kvalitativ deskriptiv studie, der datainnsamlingen er gjennom individuelle intervjuer. Kvale & Brinkmanns stadier for intervjuundersøkelse er anvendt. Studien undersøker femten sykepleiere med gjennomsnitt syv års erfaring med barn som pårørende i aldersgruppen 0-18 år på sykehjem. Resultat: Analysen av datamaterialet resulterte i tre temaer som beskrev informantenes opplevelser i møte barn som pårørende, og omhandlet sykepleiers opplevelse av utilstrekkelighet, deres ønske om mer kompetanse samt opplevelse av lite støtte fra ledelsen. Konklusjon: Sykepleierne ønsker å gjøre en god jobb med barna, men opplever at de ikke strekker til i arbeidet med barn som pårørende, og at de har for lite kompetanse til å ivareta barna.
 

Olesen, P. K., & Thestrup Hansen, S. (2024). Advancing nursing care for relatives of patients diagnosed with colorectal cancer: Insights from a qualitative study. Nordisk sygeplejeforskning, 15(2), 1-15. https://doi.org/10.18261/nsf.15.2.4 
    Relatives of patients with colorectal cancer (CC) can be psychosocially affected to such an extent that they risk becoming ill themselves. The aim of this study was 1) to investigate how relatives of people with CC experience the need for nursing support during the hospital stay and at home, which can help improve their health; 2) To generate knowledge that advances and contributes to the development of evidence-based clinical nursing for this group of relatives. The study was based on interviews of relatives of people with CC. The data was analyzed using reflexive thematic analysis and discussed from a health-promoting perspective with the theory on the sense of coherence, and ‘family dialogue’. Findings include that relatives express a need for professional nursing support, with disease management, tailored communication, and coping assistance. This study suggests that advancing nursing practice focusing on support of relatives of individuals with CC in future clinical practice may enhance the health of these relatives.